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HAE affects about 6,000 people in the United States of all races and equally in men and women.

In addition, HAE may account for 15,000 to 30,000 emergency room visits each year.

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”I keep a positive attitude about life despite my HAE by setting goals for myself that take hard work and dedication to achieve. For me, it is so rewarding to accomplish something I never thought was possible because of my HAE. Currently, my goal is to complete a triathlon by 2012. I have been training for it for the past year, and just recently completed a half marathon – something I never thought I would do before being on therapy. Crossing that finish line was the most amazing feeling in the world.” - Michele

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This site makes use of licensed stock photography along with images of real HAE patients. Some photography used depicts models for illustrative purposes only.